I do not know how to begin my next personal entry. I’m pretty sure others would be eager to learn that my condition became worse. While a few close family and friends are immensely concern and worried.
I believe there’s a power to every story.
Not just for endo-sufferers like me, but for everyone…
For the last 7 years, I have lived with endometriosis, talked about it in previous posts;
Recently, I have been getting sicker. Been bleeding for more than a month now. And so I decided to see my trusted doctors, one happens to be a good friend of mine.
I’ve missed them, it’s been a long time since my last check-up. They’re genuinely compassionate, I can feel it. And they talk to me straight, only mere facts, without any sugar-coating.
My years with endometriosis is exhausting, there are times I refused to visit a local specialist because I know she’d remind me the same dismal news. It’s also tiring to always explain my condition, the more if inquisitor is clueless about this “incurable” disease. And to my fellow endo-sufferers, surely you can relate – people often think we make all these up or it’s all in our heads. Sadly, it’s pain who is talking. I tried to mask the affliction by managing my weight. Taking different medicines, oral therapy (hormones), supplements and herbal, to the point of repugnance is a daily norm.
First, I had an ultrasound followed by SISH (Saline Infusion Sonohysterography). Both are endometrial procedures to diagnose and identify the cause of this haemorrhage. After a thorough and cautious examination, they found a polyp & among other complications of endometriosis. Something unfamiliar to me, seeing it from the monitor I thought it was a fetus (I wish!) but oh no, it was a tubulocystic structure called hydrosalpinx.
it was a tubulocystic structure called hydrosalpinx.
Hypdrosalpinx – is a type of fallopian tube blockage. Read it here hydrosalpinx, causes and treatment. Distended in my abdomen, it appeared sausage like and a probable complication of endometriosis. Along with other pelvic adhesions, I was told that conceiving is now non-viable. It is easy to succumb and dwell on despair and sadness when one is overwhelmed with trials. And so I try to see something good, something to be thankful for in my everyday life. Waking up pain-free is what I cherish the most, being able to take no medication for a day is next.
We, together with my loving family and trusted doctors, deal with it one at a time. And it helps to be hopeful, hope gives us incredible strength.
hope gives us incredible strength.
My endo-sisters our journey through pain is much sweeter if we hold on to our family, to our loved ones, if we face it together. Facing it alone will just makes things worse and heavier. I thank God for I found a local community that I can relate with, and to be part of an international organization that’s united in one goal – to end endo.
There’s a myriad of gifts to give your mom this Mother’s Day but giving her something useful, practical and that will last is what we all desire for our special “Mama”.
So here are five (5) gifts any mom would love to receive on Mother’s Day.
Every mom loves to be pampered and bath time is no exemption. Lathering in organic, handmade and natural soaps is the most inexpensive luxury. Main reason is because they often lack time and just stick with the basic skin care – a gentle bar of soap. Gift her with one that is not just any soap but also effective to remove skin problems like acne, pimple marks, warts, and other imperfections. Tried and tested by the Japanese – Kojic Acid Soap is a perfect example, and so are the likes of Rice, Oatmeal, Gluthatione, & Papaya Soaps.
Price starts at P100 shop here POSH BOUTIQUE ONLINE
Another staple, whether it is lipstick, eyebrow pen or powder. Moms need to look put-up and fab even in a time constricted life. Featured in past post How to look lovely when you’re always in a hurry – some beauty hacks for busy mothers.
*A Korean makeup trend is orange or peachy lippie hue that compliments almost any skintone.
Price starts at P99. Shop here POSH BOUTIQUE ONLINE
The fame of K-beauty is due to its emphasis on skin care. From the simplest sheet mask to the more sophisticated serum and oils. The goal is to have clear, smooth and fair skin. And who doesn’t like that?!
Price starts at P39. Shop here POSH BOUTIQUE ONLINE
Mothers don’t need to travel in order to have these must-haves, these are essential items in any working mom. Commuting can bring so much stress to our dear momsies especially in dealing with Manila traffic. Bag organisers or cosmetic bags are very practical and so is eye cooling mask. Relaxes tired eyes from a day’s work or trip.
Price starts at P149. Shop Here POSH BOUTIQUE ONLINE
Koreans also came out with cute, fashionable and most importantly – affordable coin purses/wallet. Moms know first and foremost how to save every peso coin. Giving her a purse will be of greatest use for her and she will surely be delighted.
Price starts at P49. Shop here POSH BOUTIQUE ONLINE
PLEASE NOTE: PHOTOS DO NOT NECESSARILY REFLECT THE ACTUAL COLOUR OR APPEARANCE OF THE ITEM.
Diastolic Dysfunction as simplified in previous post – Explaining Diastolic dysfunction in simple terms, is a heart condition when diastole part is not functioning properly.
Before treatment, it must be accurately diagnosed since it has similar symptoms as Systolic Heart Failure.
Treatment – first means a change of lifestyle & medicine (some doctors call it Cardiac Rehab), or an invasive option which is surgery to replace a damaged heart valve. And the following managements should be prescribed and supervised by your cardiologist.
strict control of hypertension
aggressive treatment of coronary artery disease
use of diuretics to control pulmonary congestion
use of vasodilators to make blood vessels open up, increasing in the size of the blood vessels allows more blood to flow through. This lowers the blood pressure and lessens the workload of the heart
use of beta blocker or calcium channel blocker to relax the heart muscle
or an ACE inhibitor to relax blood vessels and lower blood pressure. Helps the heart to pump more blood out to the body.
strict water and salt restriction to prevent congestion
How to take care of a family with Diastolic Dysfunction?
let them rest, shorten their working hours if possible
help reduce stress – anxiety and anger can increase heart rate and blood pressure. A relaxing and calm environment will help promote a stable heart rate and blood pressure
monitor their blood pressure and heart rate regularly
help them limit their salt intake
remind/give them their medicines on time
assist them to manage their weight and watch out for sudden weight gain that may be a sign of congestion
God bless your heart,
Medical References & Further Readings:
This post will try to explain the condition called Diastolic Dysfunction in layman’s term.
First, we have to know the two parts to the pumping action of the heart. You can use the photo below as reference.
1. Diastole – first part, when blood collects in the lower heart chambers (left & right ventricles)
2. Systole – second part happens once the ventricles contract and blood is pushed from the right ventricle to the pulmonary artery and from the left ventricle into the aortic valves.
Diastolic Dysfunction refers to when diastole part is not functioning properly. The heart stiffens and ventricles do not relax so they cannot fill with blood and causes blood to “dam up” in other parts of the body.
Pressure in the ventricles then increases as blood from the next heartbeat tries to enter. This leads to extra pressure and fluid building up in the vessels of the lungs (referred to as pulmonary congestion) or in the vessels that lead back to the heart (referred to as systemic congestion).
Pulmonary congestion – causes fluid to leak from these vessels into the lung alveoli, causing pulmonary edema. This condition clogs oxygenation of blood in the lungs, resulting in shortness of breath and in worst case scenario even death if the condition is not discovered and treated actively.
The systemic congestion – has detrimental effects on other organs in the body such as the kidney and liver, as a result of poor organ perfusion. Swelling and congestion may also occur in the legs and within the abdomen.
Causes and Symptoms:
The major causes of Diastolic Dysfunction –
Obesity and unhealthy lifestyle
High blood pressure
Hypertrophic cardiomyopathy (the walls of the heart become thick and stiff)
Aortic stenosis (narrowing in one of the heart valves)
Coronary artery disease
Restrictive cardiomyopathy (scars or deposits that make the heart muscle stiff)
Symptoms can be from nothing to shortness of breath or labored breathing, unusual swelling of the legs/feet, and fast or irregular heart beat.
If you manifest the above symptoms and a family history of heart disease, consult a trusted Cardiologist and the following tests will help diagnose if you have Diastolic Dysfunction.
Magnetic Resonance Imaging (MRI)
God bless your heart,
Medical references and for Further reading:
Still in cloud-9 days after my church wedding. Another dream came true all to God’s glory… It was a sunny Saturday afternoon, sky was clear, weather was fair. Even the notorious Manila traffic seemed to be cooperating and so we arrived in Basilica Menór de San Sebastián 40 minutes early. Long enough to finish praying the rosary, simultaneously I talked to the chauffeur and coordinator assistants. I convinced myself not to cry, “yep this is nothing” anyway Dadi is smiling down from heaven and I’m sure he is very happy for me. Finally this day came, after twelve years of anticipation…
I wrapped the rosary around my wrist like armor to strengthen me.
I thought I was equipped not to cry,
I thought wrong.
The antique steel door slowly unclosed. I was instructed to count 5 seconds before making the first step. The door flung open, and there my poor heart started beating rapidly. So fast that it felt like my heart leaped off my chest. My hands were shaking. The coordinators kept on reminding to walk slowly, I heard them faintly for my heart was much stronger ~ it desired the man standing in the altar waiting for me.
“love knows no limit to its endurance, no end to its trust.
Love still stands when all else has fallen”
1 Corinthians 13:7-8
I looked way pass him, still trying to stop the welling of my eyes. Yet, it made me more emotional. To see the image of the blessed Mother Mary (Our Lady of Mt. Carmel) was the best reminder of this dream that was about to unfold. All attempts failed and I wept, using up the tissue prepared in my hidden pocket. At that moment, everything else was blurry in my sight, I didn’t mind looking terrible and drenched in tears.
Then, I looked at the right of the altar and saw a familiar cross with the sacred image of Jesus. A similar crucifix as that of Lourdes, France. The church is such a perfect setting, everything seemed so surprisingly wonderful and surreal.
Little trivia: The church is the only all-steel church in the Philippines, made by a French engineer – Gustave Eiffel who also made the famous landmark Eiffel Tower in Paris.
And it hurts because a year ago my father died suddenly and unexpectedly, missing him in the most significant day in my life… I would have wanted him to be there even in wheelchair. But, the turn of events were tough, became even more difficult when my father-in law was again hospitalized and placed in ICU and my mom-in law needing to stay with him. And so both my in-laws and my Dadi were missing, it was painfully sweet and special.
The wedding was almost perfect, maybe perfect, because everything was God’s gift to me and Erik.
I opted for a simple one and specifically asked the photo/videographer to capture raw, candid, real emotions. I skipped many traditional scenes and the reason for this is that my life has too much melancholy and sadness already. No need to be fancy and dramatic. Masking the blues with laughters, giggles and smiles. At the back of my mind, I’d wished for Dadi to be there, handsome in his Barong Tagalog. Maybe, a chance for us to bond and to be a little vocal of how we actually feel. I missed the opportunity to tell him I love him, a goodbye never said, a guilt that affects me and regret that changed my life then on.
This post is to honor the memory of my dad, for my late brother as well. Taking opportunity to remember with love those who are no longer with us, they are in our hearts forever.
Happily ever after continues on next post…
Thank you to these awesome people/team ♥️
Ceremony: Basilica Menor de San Sebastián
Reception: Casa Roces Malacañan
BridalCar: Don Robert
Florist/Stylist: Amelia Blossoms