My endometriosis story: Journey through pain 2

I do not know how to begin my next personal entry. I’m pretty sure others would be eager to learn that my condition became worse. While a few close family and friends are immensely concern and worried.

I believe there’s a power to every story.

Not just for endo-sufferers like me, but for everyone…

For the last 7 years, I have lived with endometriosis, talked about it in previous posts;

Recently, I have been getting sicker. Been bleeding for more than a month now. And so I decided to see my trusted doctors, one happens to be a good friend of mine.

I’ve missed them, it’s been a long time since my last check-up. They’re genuinely compassionate, I can feel it. And they talk to me straight, only mere facts, without any sugar-coating.

My years with endometriosis is exhausting, there are times I refused to visit a local specialist because I know she’d remind me the same dismal news. It’s also tiring to always explain my condition, the more if inquisitor is clueless about this “incurable” disease. And to my fellow endo-sufferers, surely you can relate – people often think we make all these up or it’s all in our heads. Sadly, it’s pain who is talking. I tried to mask the affliction by managing my weight. Taking different medicines, oral therapy (hormones), supplements and herbal, to the point of repugnance is a daily norm.

First, I had an ultrasound followed by SISH (Saline Infusion Sonohysterography). Both are endometrial procedures to diagnose and identify the cause of this haemorrhage. After a thorough and cautious examination, they found a polyp & among other complications of endometriosis. Something unfamiliar to me, seeing it from the monitor I thought it was a fetus (I wish!) but oh no, it was a tubulocystic structure called hydrosalpinx.

it was a tubulocystic structure called hydrosalpinx.

Hypdrosalpinx – is a type of fallopian tube blockage. Read it here hydrosalpinx, causes and treatment. Distended in my abdomen, it appeared sausage like and a probable complication of endometriosis. Along with other pelvic adhesions, I was told that conceiving is now non-viable. It is easy to succumb and dwell on despair and sadness when one is overwhelmed with trials. And so I try to see something good, something to be thankful for in my everyday life. Waking up pain-free is what I cherish the most, being able to take no medication for a day is next.

We, together with my loving family and trusted doctors, deal with it one at a time. And it helps to be hopeful, hope gives us incredible strength.

hope gives us incredible strength.

My endo-sisters our journey through pain is much sweeter if we hold on to our family, to our loved ones, if we face it together. Facing it alone will just makes things worse and heavier. I thank God for I found a local community that I can relate with, and to be part of an international organization that’s united in one goal – to end endo. 

 

Reference/s:

http://www.verywellfamily.com

http://www.endometriosis.org

http://www.endohope.org

 

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dealing with Diastolic Dysfunction

Diastolic Dysfunction as simplified in previous post – Explaining Diastolic dysfunction in simple terms, is a heart condition when diastole part is not functioning properly. 

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Before treatment, it must be accurately diagnosed since it has similar symptoms as Systolic Heart Failure. 

Treatment – first means a change of lifestyle & medicine (some doctors call it Cardiac Rehab), or an invasive option which is surgery to replace a damaged heart valve. And the following managements should be prescribed and supervised by your cardiologist.

  • strict control of hypertension

  • aggressive treatment of coronary artery disease

  • use of diuretics to control pulmonary congestion

  • use of vasodilators to make blood vessels open up, increasing in the size of the blood vessels allows more blood to flow through. This lowers the blood pressure and lessens the workload of the heart

  • use of beta blocker or calcium channel blocker to relax the heart muscle

  • or an ACE inhibitor to relax blood vessels and lower blood pressure. Helps the heart to pump more blood out to the body.

  • strict water and salt restriction to prevent congestion

  • weight control

How to take care of a family with Diastolic Dysfunction?

  • let them rest, shorten their working hours if possible

  • help reduce stress – anxiety and anger can increase heart rate and blood pressure. A relaxing and calm environment will help promote a stable heart rate and blood pressure

  • monitor their blood pressure and heart rate regularly

  • help them limit their salt intake

  • remind/give them their medicines on time

  • assist them to manage their weight and watch out for sudden weight gain that may be a sign of congestion

 

God bless your heart,
mitch.e

 

Medical References & Further Readings:

http://www.ncbi.nlm.nih.gov/pubmed/21861070

https://www.texasheart.org/heart-health/heart-information-center/topics/diastolic-dysfunction/

https://www.summitmedicalgroup.com/library/adult_health/car_diastolic_dysfunction/

https://academic.oup.com/bjaed/article/9/1/29/465857

 

 

Explaining Diastolic dysfunction in simple terms

This post will try to explain the condition called Diastolic Dysfunction in layman’s term.

First, we have to know the two parts to the pumping action of the heart. You can use the photo below as reference.

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1. Diastole – first part, when blood collects in the lower heart chambers (left & right ventricles)

2. Systole – second part happens once the ventricles contract and blood is pushed from the right ventricle to the pulmonary artery and from the left ventricle into the aortic valves.

Diastolic Dysfunction refers to when diastole part is not functioning properly. The heart stiffens and ventricles do not relax so they cannot fill with blood and causes blood to “dam up” in other parts of the body.

Pressure in the ventricles then increases as blood from the next heartbeat tries to enter. This leads to extra pressure and fluid building up in the vessels of the lungs (referred to as pulmonary congestion) or in the vessels that lead back to the heart (referred to as systemic congestion).

Pulmonary congestion – causes fluid to leak from these vessels into the lung alveoli, causing pulmonary edema. This condition clogs oxygenation of blood in the lungs, resulting in shortness of breath and in worst case scenario even death if the condition is not discovered and treated actively.

The systemic congestion – has detrimental effects on other organs in the body such as the kidney and liver, as a result of poor organ perfusion. Swelling and congestion may also occur in the legs and within the abdomen.

Causes and Symptoms:

The major causes of Diastolic Dysfunction –

  • Obesity and unhealthy lifestyle

  • High blood pressure

  • Hypertrophic cardiomyopathy (the walls of the heart become thick and stiff)

  • Aortic stenosis (narrowing in one of the heart valves)

  • Coronary artery disease

  • Restrictive cardiomyopathy (scars or deposits that make the heart muscle stiff)

  • Aging

Symptoms can be from nothing to shortness of breath or labored breathing, unusual swelling of the legs/feet, and fast or irregular heart beat.

If you manifest the above symptoms and a family history of heart disease, consult a trusted Cardiologist and the following tests will help diagnose if you have Diastolic Dysfunction.

  • Chest X-ray

  • Echocardiogram (ECG)

  • Magnetic Resonance Imaging (MRI)

 

God bless your heart,

mitch.e

 

Medical references and for Further reading:

https://www.summitmedicalgroup.com/library/adult_health/car_diastolic_dysfunction/

https://academic.oup.com/cardiovascres/article/45/4/813/299300

https://www.news-medical.net/health/Diastolic-Dysfunction-Causes.aspx

https://www.healio.com/cardiology/learn-the-heart/cardiology-review/topic-reviews/diastolic-dysfunction